2- WHERE to find cares

leonardoARGENTINA

Centro de Investigaciones sobre Porfirinas Y Porfirias; Dr. Alcira Batlle – Hospital de Clinicas Jose De San Martin, Av. Cordoba 2351 – Primer Subsuelo, Ciudad de Buenos Aires  + 5950-8347/6

AUSTRALIA

NSW Porphyria Reference Laboratory; Dr. Peter Stewart / Dr. Victor Poulos – Royal Prince Alfred Hospital, Missenden Road – Camperdown  (+61) 2 9515 8572

BULGARIA

Clinic of Gastroenterology, Porphyria unit; Dr. Aneta Ivanova – “St. Ivan Rilski'” University Hospital 1443 – Sofia  +359 888 713 228

BRASIL

Neurogenetics Unit; Dr. Charles Marques Lourenco – School of Medicine of Ribeirao Preto, University of Sao Paulo – Sao Paulo  (+55) 16 36022616  (+55) 16 91769054

DANEMARK

Danish Porphyria Center, County Hospital Viborg; Dr. Axel Brock – Dept. of Clinical Biochemistry, Heibergs Allé 4, DK-8800 Viborg  +45 8927.2042

FINLAND

University Central Hospital of Helsinki Dept. of Medicine; Dr. Raili KauppinenHelsinki (+358) 94711

FRANCE

Centre Francais de Porphyries; Dr. H. Puy – Hôpital Louis Mourier, 178 rue des Renouillers -92701 Colombes  +33 (0) 1 47 60 63 34  +33 (0) 1 47 60 67 03

GERMANY

Porphyria Center Düsseldorf; Dr. Sandra Hanneken / Dr. NJ Neumann – Department of Dermatology, University Hospital Düsseldorf Moorenstr. 5 – 40225 Düsseldorf   +49-211-81-18327  +49-211-81-16584

Charité Universitätsklinik Berlin; Dr. Rajan Somasundaram – Campus Benjamin Franklin – Gastroenterologie, Hindenburgdamm 30 Berlin  (+49) 30 8445 4017

Hämatologisch/Onkologisch Schwerpunktpraxis; Dr. Petro E. Petrides – Zweibrückenstrasse 2 München   (+49) 89 229009 or 21 668780

GREAT BRITAIN

King’s College Hospital NHS Foundation Trust; Dr. Joanne T Marsden / Dr David Rees – King’s College Hospital, Denmark Hill – London SE5 9RS   +44-(0)-20-7346.3242  +44-(0)-203-2993.856

HUNGARY

Orsàgos Porphyria Központ; Dr. Pusztai Ágnes / Dr. Bor Márta – HM Állami Egészségügyi Központ, H-1134 Budapest Róbert K. krt. 44   +36-1-4651800/71906

ITALY

Centro per le Porfirie – Milano; Dr. Maria Cappellini / Dr. Giovanna Graziadei – Università di Milano – Centro Anemie Congenite Ospedale Maggiore Policlinico IRCCS Pad. Granelli – Via F. Sforza 35, 20122 Milano    +39-(0)-2-5503 -3783/3784/3794 ; +39-02-50320288 /3752

Centro per le Porfirie – Modena; Dr. Paolo Ventura – Policlinico Universitario di Modena Ambulatorio delle Porfirie e delle Malattie da disturbo del Metabolismo degli Aminoacidi, Via del Pozzo 71, 41100 Modena   +39-(0)-59-422.5496 /5542 /2265 or 2151

Unità di Ematologia Clinica, Dr. Gaetano La Barba – Ospedale Spirito Santo, Via Fonte Romana 8 – Pescara   +39-(0)-854.252.939 / 501 / 957

First Aid for acute attacks – Ospedale Sant’Andrea, Via di Grottarossa, 1035/39 00189 – Roma   +39-(0)-6.3377.1 (switch-board)

ISRAEL

National Diagnostic Utility; Dr. Rebecca Mamet / Dr.  Nili Schoenfeld – Rabin Medical Center, Beilinson Campus, Petach Tikva   + 972-3-9377710

LEBANON

Faculty of Health Sciences; Dr. Khalil Kreidieh – American University of Beirut, Van Dyck Hall, Room 323  – 0236 Beirut

NETHERLANDS

Erasmus MC University Hospital; Dr. François Karstens / Dr. Janneke Langendonk – Rotterdam (+31) 10 70 40704

Department of Dermatology; Dr. Jorge Frank – Maastricht University Medical Center (MUMC), P. Debyelaan 25 – 6229 HX Maastricht   (+31) 43 3877292

NEW ZEALAND

Porphyria centre; Prof. Chris Florkowski – Canterbury Health Laboratories, Hagley Avenue – Christchurch   (+64) 3 364 0300 ext 89570

NORWAY

Nasjonalt kompetansesenter for porfyrisykdommer (NAPOS); Prof. Sverre Sandberg – Haukeland Universitetssykehus – Bergen    (+47) 55 97 31 70

POLAND

Instytut Hematologii i Transfuzjologii; Dr. Robert Wasilewski – Poradnia dla Chorych na Porfiriê i cz³onków ich Rodzin, 02-766 Warszawa, ul. Indirii Gandhi 14    (+48) 0 22 349 61 32 / 53

RUSSIA

National Research Center for Hematology; Dr. I. V. Karpova – Novyi Zykovskiy pr.,4 – 125167 – Moscow    +7(495)6122361, +7(495)6124866

SOUTH AFRICA

UCT Lennox Eales Porphyria Labs; Dr. Peter Meissner – Old Main Building Groote Schuur Hospital K-floor – Observatory 7925   +021-4066332

Nelson Mandela School of Medicine, Dr. Richard Hift – University of Kwazulu-Natal Medical School, Umbilo Rd, Durban 4075    (+27) 031 260 4458 or 4216

SPAIN

Laboratorio de Porfirias- Centro de Investigación; Dr. Rafael Enríquez de Salamanca / Dr. Manuel Méndez Alba – Hospital 12 de Octubre, Avenida de Córdoba, Km 5,4 – 28041 Madrid   +34 91 390 87 68

Hospital Clinic Barcellona; Dr. Carmen Herrero – Universidad de Barcelona  – Barcelona (+34) 932 275 400, ext 2422, 2221

SWEDEN

Porfyricentrum Sverige; Dr. Stig Thunell /Dr Eliane Sardh – Karolinska Universitetssjukhuset 171 76 Stocholm   +46 (0)8 517 714 43

SWITZERLAND

Porphyrie-Referenzlabor; Dr. Elisabeth Minder – Stadtspital Triemli, Birmensdorferstrasse 497 Zurich  (+41) 44 466 23 20

TURKEY

Gülhane Porfiriya Merkezi; Dr. Ismail Kurt / Dr. Serkan Tapan – Gulhane School of Medicine Department of Medical Biochemistry – Etlik 06010 Ankara   +90 312 3043301

USA

Porphyria Center; Dr. Karl Anderson – University of Texas Medical Branch, RT-J 09 Ewing Hall – Galveston, TX 77550    +(409) 772-4661

ARUP Laboratories; Dr. Elizabeth L. Frank – University of Utah Department of Pathology, 500 Chipeta Way – Salt Lake City, UT 84108    +(801) 583-2787 1-x2087

Fairview University Diagnostic Laboratories – University Campus, Mayo Bldg., Room D-293, 420 Delaware Street SE (UH-198) – Minneapolis, MN 55455   +(612)-273-7838

Mount Sinai Medical Center; Dr. Dana Doheny – Mount Sinai School of Medicine, 1425 Madison Avenue, Room 14-74 – New York, NY 10029-6574    +(212) 659-6779

(sources: European Porphyria Network, British Porphyria Association, American Porphyria Foundation)

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